Hi, You There Who Are Or Are Thinking About Spending All Day In Bed, It’s Okay, I’m Not Telling You

It’s the not knowing when it’ll stop. The unpredictability. Wondering “will this ever get any better?” It’s the people close to you just accepting that this is how you are now. It’s the 24/7 nature of it all. It’s the not having a choice. It’s the not having a break from it. It’s the people around you thinking you chose this. As if you enjoy it. As if you actually chose this life. Nobody would ever choose this. It’s the having to play symptoms down. It’s having to pretend it isn’t as bad as what it is. It’s having people judge you, even the people closest to you. It’s having to live with symptoms that most people wouldn’t know how to even begin to cope with. It’s a lack of self confidence and self purpose. It’s staying hopeful when it doesn’t seem like there’s anything to be hopeful for. It’s a lot of things.

You might not feel it, but you’re one of the strongest people EVER. You put up an invisible fight daily. You do all that you can. You often survive second to second, minute to minute, hour to hour. You get through the day. You do your best no matter what obstacles are in your way. And it’s important to remember that even on the really bad days that you’re amazing. You’re strong. You’re tough. You’re fabulous. Lots of love xxxxxx

I don't have a scooter attachment or any motor attachment for my wheelchair, but I sometimes drive fast bc I am able to and I love it. I'm genuinely considering getting a "ringing bell" (idk I forgot the English word for it) and/or a "honking thing". Bc people walk sooo slow and I'm zooming ahead and most people are completely unaware of their surroundings

For the Danes or Danish speaking individuals, the words I'm thinking of are "ringeklokke og båthorn" :D

Happy Gay Olympics Eurovision!

ICELAND ICELAND ICELAND ICELAND

sometimes i think ive made peace with being permanently disabled & feel like even tho it sucks i can handle it. and sometimes i have to scream and scream and scream and cry myself to sleep because this is forever & i dont know how i’ll manage that

Sleep doesn’t help if it’s your soul that is tired

(via roberta-ninety-three)

This makes me really happy. I hope I can be that for someone.

oh by the way!! yesterday morning i saw someone my age walking with a cane while i was going to school. it was the first time and it was really quite exciting!

i haven't really needed my cane in a while now but seeing other young people using one really makes me feel less alone <3

this is your reminder that if you are young and going out in public with a mobility aid there probably will be some seemingly able-bodied kid watching you and feeling less alone. and just maybe they might try taking their aid outside, someday.

I can't wait to do this when I'm a doctor!!

Doctors should snark at each other more, be a bit mean. Not for no reason, mind you. But if five doctors blow me off about symptoms and doctor number six FINALLY runs actual tests and gets a diagnosis, I think it should be Doctor Six's right to call up the other five and tell them they're lazy pieces of shit. That should be socially encouraged. Those first five doctors clearly can't listen to patients, but maybe another doctor might finally get to them.

Please don’t feel guilty for taking a break or giving yourself some time off. Sometimes you need to rest one day in order to reach heights you previously believed to be unattainable the next. Work hard, rest hard.