PSA Regarding Tumblr’s Latest Censorship Nightmare

Or if none matter to you at all, it’s all okay

You decide what relationships in your life are the most important. And who you're closest too. You decide what types of relationships matter to you most.

Idk if I've posted about this before, but the most important thing I've learned in 2022 (The Year Of Never Ending Doctors' Visits) is to leave every medical appointment with a clear-cut set of next steps. When you have a chronic health issue, it's not just as simple as telling the doctor what's wrong and letting them take it from there.

If you go in for an undiagnosed issue, your should leave with:

An investigative plan: Orders for labs, imaging, or specialist referrals to try and figure out what's causing the problem. If your doctor doesn't want to order tests, ask why. It could be an insurance issue (e.g. tests denied unless front line treatments have failed), or it could be a bias issue. If it's a bias issue, things get more complicated, but the first step towards adequate care is asking your doctor to note that you requested testing for the issue and they denied it on the basis of [whatever]. I have some tips for next steps in these situations, so feel free to shoot me a message.

A "what-if" follow up plan: Ask your doctor, "What if the labs/scans/etc. come back negative or inconclusive? What if this treatment plan is not effective after [preestablished length of time]? What's the next step?" and make sure the next steps are noted. This helps keep you on your doctors' radar until you have an effective care plan in place.

A symptom management plan: Really spell out the effect the symptoms are having on your daily life. Let the doctor know you're fully invested in long term recovery, but that you need something to help you live your life as "normally" as possible until the long term treatment plan can be established and take effect. This could be medication, assistive devices, FMLA or other documentation for work/school, etc.

If you go in for a diagnosed issue, swap out the investigative plan for a long-term treatment plan. The goal should be to reduce your symptoms or prevent progression, if possible. For some conditions, this looks pretty similar to symptom management.

This has been working pretty well for me lately. At the end of my appointments, I verbally summarize my understanding, like "Okay, so we're trying to figure out the cause of my [symptom], and you've ordered XYZ tests. If nothing comes back abnormal, you'll [order different tests, refer to specialist, etc.]. In the meantime, I can manage it with [medication, lifestyle change(s), adaptive device, etc.]. Is that a good summary of our plan?"

Rinse & repeat at any/all follow up visits.

っ˕ ◟͈ აྀི

Show us your pride outfits!

Uh sorry no

I don’t feel comfortable sharing pictures of me on tumblr ✌️

‼️please help me get a wheelchair‼️

hello, my name is leo, or more commonly known as ‘lav’ on here.

i’ve been dealing with debilitating chronic pain for over 10 years and i really need a wheelchair. i haven’t gotten much help from my healthcare system, being fat and afab has really fucked me over while trying to seek medical attention..

i am still fighting to completely figure out what’s wrong with me, but for now i know that i have several bulging discs in my lower back, as well as scoliosis. (as well as medically recognised POTS).

my pain is getting worse and worse, and i barely leave my home since walking and being upright in general hurts so much. a wheelchair would improve my life immensely, both physically and mentally.

i am currently on disability benefits, which pretty much is the lowest income group in sweden, and saving up for a wheelchair myself would take a very long time.. i will of course also be saving up as much as i can and putting into an account meant for wheelchair funds.

so i’m asking you to donate if you want to and if you are financially able to, and if not, please reblog this.

i have found a good chair that is also accessible to a fat person, and i need 7111 SEK (around 650$) to cover the cost of the chair & the shipping. i have started a gofundme that i’ll be sharing in this post, and i welcome all help, donating just a little helps, and reblogging and sharing the gofundme in general helps immensely too.

thank you so much for reading💜

gofundme.com

please help me get a wheelchair!, organized by Leo Noren

hey, my name is Leo and i am almost 24 years old. i have been dealing with chronic pain fo… Leo Noren needs your support for please help me

Uhhh Howdy?

I like to sew.

And because of that I make Stuffies.

I also like stuffies.

I also also SELL stuffies.

I have a my own website and everything!

It’s not great or anything, but it works and I made it myself!

The only issue is I don’t ship them nationally so I only can share them within the San Antonio, TX area.

So if you are willing to support me or just really want a custom stuffie, check out my website!

https://sites.google.com/view/sonny-little-stuffies-co/product-info

sites.google.com

Sonny Little Stuffies. - Product Info

Intrested in buying? find out more

Please help a black teen get out of their abusive home

tw: abuse, abusive home

“I go by Ana, I’m a black teen (I’m 19) and I want to leave my home since I’ve been abused mentally my whole life, a few weeks ago I was hit by my dad for the first time while he was enraged and under the influence of alcohol. My face is now scarred, I wasn’t even able to cure myself properly, my mom just gave me some bandaids and sent me to my room. I’ve been unable to scape since curfew it’s strict at night and it’s the only hours I’m able to leave the house so they won’t notice.”

donate to them here!

other links: 

paypal

amazon list

x

Hey y’all!

I’m about to make a website for an organization I’m creating to help those with hidden/invisible disabilities and illnesses.

I want to be able to make this website accessible for people with all types of conditions and wanted to reach out on here to get any suggestions from people with those types of conditions.

I also created an Instagram for the organization but it’s still in the very early stages so I won’t be sharing yet…

Let me know if you have any suggestions or questions!

Ahh I forgot to do this yesterday day

Favorite lgbt meme?

Favorite Lgbt ship?

Would absolutely have to be zukka

I read a ton of fanfics and love all the fanart.

I love a lot of ships but if I listed them all we’d be here awhile.

Why the hell am I only hearing about this at 23:02?!?!?

HAPPY ACE DAY BABES!!!!

Hey what if we reblogged out ace specifications to show the diversity of the ace spectrum?!

I’ll start and if ya want let’s keep it going!

I’m AroAce and I personally am sex-neutral. I wouldn’t have sex but I’m not repulsed by it and even enjoy reading smut on occasion. I don’t really like the concept of being in a relationship but am open to QPRs.

Love y’all!!

🖤🤍💜

today is the first international asexuality day! on this day, we celebrate those that are under the ace umbrella, including demisexual, gray-asexual, and all kinds of other ace identities.

asexuality is the lack of sexual attraction to others, or low or absent interest in or desire for sexual activity.

asexuality is valid. asexuality exists.

if you are an allosexual person, check in with your friends that are in the ace spectrum today! let them know you are with them every step of the way. and educate those who do not know what asexuality is.

and for us in the spectrum, let's use this day to celebrate our identity! we are in this together, let's not lose the community spirit. we have enough love for everyone.

sending love to my people, happy asexuality day!