Chronic Illness Tools Master Post

Chronic Illness Tools Master post

Hi! I'm Laura. I am disabled with Ehlers Danlos, MCAS, and POTS. Here are a few mobility aids, physical therapy tools, braces, comfort items, and other things that I have acquired over the years that significantly increased my quality of life. I hope it helps someone.

Mobility aids:

Folding cane

Instant seat

Shower stool (nice quality)

Shower stool (cheap but works)

Physical therapy tools:

Exercise ball (small)

Exercise ball (large)

Exercise bands (with handles)

Yoga wheel

Cervical traction

Resistance bands

Theraband (get that GRIP)

Foam roller

Grip strength resistance bands

Adjustable ankle weights

Braces:

Neck brace

Wrist widget

Thumb splint

SI Joint Belt

K-tape

Knee brace

Wrist braces

K-tape (non-bulk)

Back brace

Elbow brace

Comfort items:

Heating pad

Neck and shoulders heating pad

Massage gun

Hand fan

Acupressure mat

Large Icepack

Leg pillow

Neck pillow

Bulk epsom salts (guess this could also go in the next category)

SALT:

Saltstick fastchews (orange and watermelon are my favorites)

Salt pills (that don't upset my tummy)

Cell Salts (these help my migraines)

Misc:

Quercetin (for allergies)

Neti pot

Bug bite thing

Hand warmer

Bed tray table

Toilet seat cushion

Yoga swing (yeehaw cowboy)

Cooling towels

TENS Unit

Huge Mason jar pitcher thing (revolutionized my access to water)

Pulse oximeter

*Notice* All of the above are Amazon Affiliate links.

As I am a disabled artist, I do not make much money. As I'm sure you know, it is very expensive to be disabled. These links wont cost you any extra to use, but I will get a small amount of the commission if you buy any of these items within 24 hours of clicking the link. Thank you!!!! (please boost this if you can, thank you, ily.) venmo

More Posts from Sonny-ray-of-goth and Others

2 years ago

Holy shit. I just realized something and I need to share it with the rest of the disabled community.

If you're a disabled American who can't get married because you'd lose your medical coverage, I have an option for you

Handfasting Ceremonies. These are ancient pagan marriage ceremonies (but you don't have to necessarily be a pagan to do them) that are still practiced today where a couple’s hands are bound together to represent the binding of their souls. It's an official marriage ceremony and people need to be ordained to perform them and everything, BUT they’re not considered legally binding in the United States. You can still do them, but they won’t have any legal repercussions. So, if I ever want to get married, I could just do a handfasting ceremony and be married, but not have to legally lose my health coverage. AND handfasting ceremonies are open to same sex couples too!

I've cracked the code. PLEASE SHARE THIS AROUND, THIS COULD BE A GREAT OPTION FOR A LOT OF DISABLED FOLK WHO WANT TO GET MARRIED BUT CAN'T BECAUSE OF BULLSHIT MARRIAGE LAWS!!!

Holy Shit. I Just Realized Something And I Need To Share It With The Rest Of The Disabled Community.
Holy Shit. I Just Realized Something And I Need To Share It With The Rest Of The Disabled Community.
Holy Shit. I Just Realized Something And I Need To Share It With The Rest Of The Disabled Community.
Holy Shit. I Just Realized Something And I Need To Share It With The Rest Of The Disabled Community.
Holy Shit. I Just Realized Something And I Need To Share It With The Rest Of The Disabled Community.
Holy Shit. I Just Realized Something And I Need To Share It With The Rest Of The Disabled Community.
10 months ago

People keep saying stuff about how the descendants maleficent isn’t The Maleficent from her namesake movie, which before ride of red I would understand and just say this is my headcanon

HOWEVER

Obviously in this universe things aren’t happening exactly the same as either Sleeping Beauty or The Maleficent movie. Therefore I think it’s reasonable to make headcanons that mesh both of these worlds. I mean Jasmine and aladddin are attending high school together instead of marrying basically a week after meeting.

So I stand by my interpretation of maleficent being an assault victim who is surrounding herself with strong people she trusts and making herself out to be strong and attacking anyone who makes her feel weak.

Also kinda related but not, I wonder of Maleficent and Morgie are close given that they’re both Fae. Morgana was a very strong sorceress of fae descent and given Maleficents lack of family and her general history I would imagine she idolizes her.

Okay i doubt Disney put this much thought into it but

In rise of red we get to see Maleficent. And she doesn’t have her wings. For those of you who don’t know, in the live action movie, Maleficent was assaulted by someone she trusted and he tore her wings off.

Which means at this point in time Maleficent is already an assault victim and is probably attending school with her assaulter.

No wonder she hangs around the god of the underworld, a daughter of Neptune, and two gay guys.

Shes surrounding herself with people who make her feel safe and guard her from weakness.

Just a thought…


Tags
1 year ago

I feel the need to clarify that penetration doesn’t just mean sex, not that OP was implying that, just cause that’s what I immediately thought.

It can also mean using tampons, which I can’t do because of this, and I just found out I have pcos.

Lease take care of yourselves lovelies!!!!

I wonder how many ppl with vaginas deal with vaginal atrophy without being on HRT but don't know and were given shitty little dismissals or incorrect diagnoses from their doctors

Bc I learned what it was from trans men and knew that's what I was dealing with, had a doctor check and say "oh yeah" and put me on oral estrogen which fucked me up, the correct treatment is vaginal estrogen cream or suppositories

IF YOU HAVE PCOS OR ANY OTHER HORMONE BASED DX and you have a vagina and penetration HURTS, please ask your doctor about vaginal atrophy. This is not something I was ever told about with any of my diagnoses but it's affected me since puberty. I use cream now a couple times a week and penetration doesn't hurt anymore and I don't struggle with dryness. This is a common symptom of having higher T in your body whether it's natural or due to HRT. This does not only affect post menopausal people or trans people on HRT.

Also atrophy can become bad enough that you deal with chronic pain constantly without penetration. Pain anywhere isn't normal and pain in your vagina at all is certainly abnormal.


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7 months ago
っ˕ ◟͈ აྀི

っ˕ ◟͈ აྀི

4 years ago

Ok

I need y’alls help with something.

I’m doing this thing and I need all of y’alls best cheesy pickup lines, as many as you can think of!!! 

Any brand of pickup line is allowed, but that doesn’t mean they will be used. 


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3 years ago

Favorite LGBTQIA+ tumblr!

For sure would have to be @crimson-chains

I absolutely love all of their works and am always waiting. For them to update both on tumblr and their other accounts.

If you see this @crimson-chains, I want you to know that you bring so much joy into my life and are an absolutely amazing artist and storyteller, thank you for all you do!


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1 year ago
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems

Important seasonal reminder, if you're on meds for chronic or mental illnesses, they can cause you problems with the heat! Thanks to spoonfulofhan on Twitter for these! She also has tips for dealing with the heat:

Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
Important Seasonal Reminder, If You're On Meds For Chronic Or Mental Illnesses, They Can Cause You Problems
2 years ago
A Weird Trick to Get Doctors to Listen to You — Pain News Network
Pain News Network
By Crystal Lindell, PNN Columnist There’s a lot of advice out there on how to get a doctor to take you seriously. Most of it is wrong. Lu

This ABSOLUTELY works.

I have used this for many years. Definitely b do it.

2 years ago

I'm so extremely serious when I say doctors should be put through an extremely extensive reliscensing process every 10 years. Doctors should have their knowledge scrutinized against current medical research and be de-barred at even the tiniest discrepancy. Too many old doctors absolutely refuse to stay up to date on research and dismiss patients because of their personal experiences. Too many people die every year because doctors don't take us seriously and refuse to listen to people who KNOW something is wrong. Too many people are told their problems are nothing and come back in a year or more with serious illnesses and doctors are just like "lol everyone makes mistakes" but doctors mistakes routinely cost people their lives! I'm tired of medical malpractice being swept away under the guise of "mistakes were made."

4 years ago
I Love You Mr Vinman

i love you mr vinman

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sonny-ray-of-goth - Sunflower grunge
Sunflower grunge

I love all things frog, mushroom, rainbow high… I have Ehlers danlos syndrome and use both a rollator and a cane. Enby that is bad at making friends but likes to have them. I adore many cartoons but haven’t seen even more.

197 posts

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