I Think People With Brain Damage And Neurodegenerative Diseases' Unique Position On Brain/body Duality

I think people with brain damage and neurodegenerative diseases' unique position on brain/body duality is so heavily appropriated by others and used to speak over us or put words in our mouths that I don't think we're ever actually allowed to speak about it ourselves. That's a huge loss I think, because I think we really do have a lot to say that could be very beneficial to the community and disability rights as a whole. Even to our understanding of the human experience and its physical nature, I think.

To have your body tangibly damaged, and through it your entire world and self too, to be changed so intrinsically that it spans both the body and the very essence of self. The inseparability of your physical disabilities and who you are not just on a spiritual or social level but a tangible, physical, neurological one, where even in a hypothetical future you couldn't cure the physical without changing the self, everything you experience, in ways that can be almost impossible to comprehend. The absolute, unavoidable understanding of every fiber of one's self as a physical phenomena, down to the very last thought or feeling, and coming to terms with it.

Unfortunately I think unless people stop using us as a mouthpiece to talk over each other, we won't get to have those conversations. If you want us to speak, you need to listen. I mean really listen. No picking and choosing, no deciding for us what you think it means. No trying to relate our experiences to your own when we tell you that no, those things aren't the same. Just listen and uplift our voices, especially those of us who can't communicate our thoughts and experiences very well.

More Posts from Sp00kybutch and Others

1 year ago

Reblog if you have a cute girldick.

1 year ago

she’s got a dick like an icepick, and by the gods.

i’m in need of a lobotomy.


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1 year ago

Reblog this if it’s okay to DM you and shoot the friendship shot.

1 year ago

me hallucinating i’m on shark tank after 600mg of DPH

black turtleneck guy: our company was founded on one simple principle—that God is a living creature and can be killed

shark tank guy: what’s the over-under on product parity?

catholic priest (watching this afterwards on a vtuber reaction video): *pauses, points at screen* that right there might be heretical

nematode worm: *caresses my brainstem*

nematode worm’s guardian angel: this one’s a thinker

1 year ago

currently thinking about how the Tower of Babel actually happened. but it wasn’t a curse from a god, we didn’t do anything to earn it, it’s just a process that happened and continues to happen slowly and steadily across time.

the real Tower of Babel is the sharing of culture, of conversation and companionship. each connection made changes both sides just a little, until it becomes unclear whether there was any sides to begin with. our ways of speaking are composites of the expressions of everyone we’ve ever known and loved. to be known and loved is to be changed irrevocably, and to bring about change.

and i think that’s beautiful.

the japanese “-ne?” particle and the british slang term “innit” serve the same function


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1 year ago
This Is 90% Of Why My Blog Says “i Dont Know How To Use Tumblr But Im Learning.” What The Hell Is

this is 90% of why my blog says “i dont know how to use tumblr but im learning.” what the hell is this and how am i supposed to know


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1 year ago

when someone does this to me they get a Telltale Games popup [Sp00kyButch will remember this.] and they permanently lose access to some of my story choices

Me When My Able-bodied Friends Walk Too Fast

Me when my able-bodied friends walk too fast

11 months ago

hai u can ask me stuff if u want

GET TO KNOW YOUR MUTUALS!!!

send numbers to ask questions!

1) whats your favorite tv show episode and why? 2) what is your dream job? 3) the best weather? 4) favorite album? 5) what are your hobbies? 6) under rated album we should know about? 7) least favorite food and why? 8) any body modifications that youd want? 9) youtube, netflix, hulu, or max? 10) do you have any hidden talents? 11) if you had a different name than your own what would it be? 12) if you were in avatar, what element would you bend? 13) a fact that you know that not many other people do but you think others should know about? 14) describe you’re favorite nature spot youve ever seen! 15) what is something youve never gotten to do but would love to do one day? 16) what’s your zodiac sign? 17) how tall are you? 18) do you drive? if so what if your dream car? 19) whats you’re favorite planet? 20) what tag do you view the most on tumblr?

8 months ago

this is happening to me rn

every character should get fatter to signify that their life no longer sucks

9 months ago

I think it’s really unfair that I (a person who needs to feel loved all the time) am so incredibly hard to love.

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sp00kybutch - a pup and perhaps more
a pup and perhaps more

21 yo physically + cognitively disabled dogboy. complicatedly and tentatively plural. disability awareness/advocacy and sometimes kink posts. artist and musician who likes to wax poetic about silly things.

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