THIS Its So Important To Understand That While Yes Absolutely We Need Support And Funding For Sick Kids

I've been a winx fan since like... forever, I can't believe Rai is using AI to make the reboot.

(Thanks to Maiky Odel, they shared the proof they could find with me)

Idk who needs to hear this, but “it could always be worse” is a genuinely harmful mindset. And that applies to multiple situations whether it be mental health or physical health. Yes it could be worse, but it could also be significantly better. You deserve to reach out for help before you drown in your issues. No matter if someone drowns in 4 feet of water or 20, they are still just as dead.

IS THAT AN EXPENSIVE SOUND 😭😭😭😭

Just random stuff I find annoying

this is officially my longest migraine. day 28.

i am beyond sick of this. mentally struggling with how reliant on my carer i have to be during migraines.

i can handle it when its only a few days but this long is a whole other world. i dont experience this level of dependance that often so im not really used to it still.

on day 5 of a migraine get me out of here

im down when do we start

I need a ballet class with just disabled and chronically ill dancers so I can get back into dance without being yelled at for my limited range of movement

I know I'm shouting into the void with this one but like. Genuinely so many low support needs people dont understand what it's like having even medium support needs. Like I am entirely dependent on other people for many of my needs. I can not see a doctor without someone else scheduling the appointment, taking me there and doing a large amount of the communication for me.

If my caretaker had not been accepting of me being trans and invested hundreds of hours into psych appointments and taking me to my endocrinologist and doing all the paperwork involved with my name change and literally taking a week off work to stay with me in the hospital for surgery etc i would have just like. Never transitioned. My ability to transition was entirely dependent on a singular person and that's what a lot of other parts of my life are like as well. and that's fucking terrifying and a great way to be neglected and abused in ways that are horribly hard to get away from.

I dont drive, I dont work, I struggle to leave the house at all, I dont fucking communicate with people majority of the time. The things that are hard for you? I probably can not do them to begin with. No one in my family lives even close to a comparable life to me. None of my irl friends do. I'm incredibly isolated.

And then I go online and see people rant about how easy MSN and HSN people have it because we just get everything we need and how because people can tell we are disabled everything is so easy because none of you even manage to listen to us talk about the neglect and abuse and trauma we face/d. I see people angry at their (more) disabled siblings for getting care they need to survive instead of mad at society for creating a system where its incredibly hard for families to take care of both a higher support needs child and another child.

And I see people who live completely independent lives who work and drive and make their own doctors appointments and grocery shop and travel by themselves call themselves MSN (I could go on a rant about how that's also often the fault of LSN influencers for not leaving a lot of room in their own community for legitimate struggle but that's for another day).

I just want my needs met. I want to be able to decide where I live. I want choice in my care. I want to be able to have community with those like me. I want others to realize I exist and leave the words i have to describe my existence alone. I want others to listen to what I have to say about what my life is like.

chronic pain diagnoses are all like yeah we don't know what this is or why it happens. we also don't know how to treat it. good luck out there soldier

THIS IS GENIUS WHY HAVE I NEVER DONE THIS

slay ty to ur partner for accidental allyship

People who spend a lot of time in/on bed, I have a recommendation for you... Go to some big and cheap store like Kmart and get yourself a kids activities tray!

My partner got this for doing crafts on the couch but we've repurposed it to be a writing surface for my bed-rot days. It's not perfect (I'd prefer a surface a bit higher, and it squishes these thicc thighs a bit) but it's a pretty good stop-gap for $10-20

Sometimes, I still feel so able bodied.

Like the aches and pains are quiet for just a moment long enough for me to remember what freedom I used to have. It's almost like if I yearn for it hard enough, I can have the old me back. The me that could still achieve all my dreams. The me that had no idea what was coming and how much it would all cost me.

Somedays, I still feel the urge to live the way I could before. Carefree and boundless. God, I can almost taste it.

laughs at how its less than a day since i answered this and my number has already gone up again 👍🏻👍🏻👍🏻